Take part in research

50 people with Parkinson’s:

•  who are experiencing anxiety or low mood

•  have a stable medication regime, with no changes anticipated in the next 12 weeks

•  who have not accessed psychotherapy such as CBT, counselling, or acceptance and commitment therapy in the past 12 months 

Unfortunately, those diagnosed with a mental health condition such as psychosis are unable to take part. 

 

5 people who:

•  are aged over 60

•  live with 1 or more pets

•  receive care at home 

•  and have access to a computer

Unfortunately, those who experience severe memory and thinking difficulties are unable to take part.

17,000 people without Parkinson's aged between 60 and 80

•  70 people with Parkinson’s 

•  70 people without Parkinson’s 

To take part, you need access to a computer or laptop. Tablets (such as an iPad) can be used if connected to a keyboard (e.g., via Bluetooth).

4,000 people with Parkinson's who live in the UK and are aged between 30 to 90 years old. 

The research team is currently prioritising people between the ages of 35 and 75 who have been diagnosed with Parkinson’s in the last 7 years, to be screened to take part in the ASPro-PD research study.

300 people who have access to a device connected to the internet. 

• with Parkinson’s

• or health professionals who work with people with Parkinson’s

• or exercise providers for people with Parkinson’s
 

350 people with Parkinson’s 

• who are taking Parkinson’s medication

• have recently attended a hospital visit or have a visit planned in the near future

•  30 people with Parkinson’s or Lewy Body Dementia who:
•  currently experience visual hallucinations (this could include seeing things that aren’t there and mistaking objects for other things)
•  and have access to the internet
 

• 10 people with Parkinson’s dementia who are experiencing hearing loss

• 10 people with Dementia with Lewy Bodies who are experiencing hearing loss

• 10 unpaid carers for people with Parkinson’s dementia or Dementia with Lewy Bodies who are experiencing hearing loss

Everyone taking part must have access to a device that connects to the internet at home such as a computer, smartphone or tablet.

•  25 unpaid carers or supporters of people with Parkinson’s 
 

320 people with Parkinson’s.

Unfortunately, those diagnosed with any other neurological conditions such as dementia or severe mental health issues such as depression are unable to take part.

People with Parkinson's, Parkinson’s with Dementia and Lewy Body Dementia living in Scotland

100 unpaid carers of people with Parkinson’s who experience memory and thinking problems as a symptom of their Parkinson’s.

5 supporters of people with Parkinson's who:

•  have noticed a change in the speech of the person they are supporting 

• and have helped a person with Parkinson’s to use a smart speaker

All participants will need access to a computer with an internet connection and a camera. 

•  140 unpaid carers of people with Parkinson’s who have access to the internet and an email address
 

115 people with Parkinson’s, who have used remote physiotherapy services in the UK. This includes video calls, phone calls, or mobile applications. 

The researchers are keen to hear from people from all backgrounds but especially keen to hear from people from Black, Asian, Arab or mixed heritage backgrounds.