Take part in research

•  30 people with Parkinson’s or Lewy Body Dementia who:
•  currently experience visual hallucinations (this could include seeing things that aren’t there and mistaking objects for other things)
•  and have access to the internet
 

17,000 people without Parkinson's aged between 60 and 80

People with Parkinson's, Parkinson’s with Dementia and Lewy Body Dementia living in Scotland

4,000 people with Parkinson's who live in the UK and are aged between 30 to 90 years old. 

The research team is currently prioritising people between the ages of 35 and 75 who have been diagnosed with Parkinson’s in the last 7 years, to be screened to take part in the ASPro-PD research study.

5 supporters of people with Parkinson's who:

•  have noticed a change in the speech of the person they are supporting 

• and have helped a person with Parkinson’s to use a smart speaker

All participants will need access to a computer with an internet connection and a camera. 

350 people with Parkinson’s 

• who are taking Parkinson’s medication

• have recently attended a hospital visit or have a visit planned in the near future

115 people with Parkinson’s, who have used remote physiotherapy services in the UK. This includes video calls, phone calls, or mobile applications. 

The researchers are keen to hear from people from all backgrounds but especially keen to hear from people from Black, Asian, Arab or mixed heritage backgrounds.
 

• 10 people with Parkinson’s dementia who are experiencing hearing loss

• 10 people with Dementia with Lewy Bodies who are experiencing hearing loss

• 10 unpaid carers for people with Parkinson’s dementia or Dementia with Lewy Bodies who are experiencing hearing loss

Everyone taking part must have access to a device that connects to the internet at home such as a computer, smartphone or tablet.

• 15 people with Parkinson's who experience problems with facial expression. For example, a “masked” face or involuntary facial movements. 

• 15 loved ones of people with Parkinson’s who experience problems with facial expression. You must have known your loved one with Parkinson’s before their diagnosis.  

Unfortunately, those with a history of stroke or Bell’s Palsy are unable to take part.

320 people with Parkinson’s.

Unfortunately, those diagnosed with any other neurological conditions such as dementia or severe mental health issues such as depression are unable to take part.

100 unpaid carers of people with Parkinson’s who experience memory and thinking problems as a symptom of their Parkinson’s.

50 people with Parkinson’s:

•  who are experiencing anxiety or low mood

•  have a stable medication regime, with no changes anticipated in the next 12 weeks

•  who have not accessed psychotherapy such as CBT, counselling, or acceptance and commitment therapy in the past 12 months 

Unfortunately, those diagnosed with a mental health condition such as psychosis are unable to take part.