Parkinson's UK in Parliament
We work to ensure that MPs and Peers understand the issues affecting people with Parkinson's and their carers, so they can make sure policy reflects their needs.
We engage with MPs and Peers in the UK Parliament as well as Members of the Scottish Parliament, the National Assembly for Wales and the Northern Ireland Assembly.
We also provide the secretariat to the All-Party Parliamentary Group (APPG) on Parkinson's. This is a group of cross-party MPs and Peers with an interest in Parkinson's.
In September and October 2018 we attended party conferences with people affected by Parkinson's to highlight the issues they face.
We met with MPs to promote our priorities for healthcare, research and the welfare system.
You can email [email protected] if you have any questions or would like to know more about our work at party conferences.
Tell your MP about your experience with Parkinson's
If you want to lobby your MP on Parkinson's-related issues, you can write to them at the House of Commons, London, SW1A 0AA.
For advice on contacting your MP, email [email protected].
All-Party Parliamentary Group on Parkinson's
What is the All-Party Parliamentary Group on Parkinson's?
The All-Party Parliamentary Group (APPG) on Parkinson's is a cross-party group of MPs and Peers with an interest in Parkinson's.
The group aims to raise awareness of the condition among parliamentarians and to influence legislation and policy makers to improve the lives of people affected by Parkinson's.
We provide the secretariat to the APPG.
The Group's remit
The APPG's remit includes:
- keeping Parkinson's on the political agenda
- investigating, monitoring, reporting on and providing a forum for discussion
- exerting pressure on issues relating to the implementation of relevant government initiatives, with the ultimate goal of ensuring equal access to recommended appropriate health and social services to all people with Parkinson's and their carers
- providing regular briefings to parliamentarians in order to ensure awareness of the needs of people with Parkinson's and their carers
- ensuring policy making is evidence-based and focused around the needs of service users
- liaising with members of the devolved administration within the UK in order to share best practice
Who are members of the APPG?
Madeleine Moon (Labour), Chair
Madeleine has raised Parkinson's issues with ministers on a number of occasions, as well as taking part in previous inquiries. She also Chairs the Defence Select Committee.
During her 30 year career in health and social care, Madeleine often worked with people with Parkinson's.
Baroness Gale (Labour), Co-Chair
Baroness Gale has been a Chair of the APPG since it was established nearly 10 years ago and played a key role in the previous APPG inquiries. She consistently raises Parkinson's UK issues in Parliament.
She has been a member of the House of Lords since 1999. She previously served as General Secretary of the Welsh Labour Party and is an active trade unionist.
Baroness Finlay of Llandaff (Crossbench), Vice Chair
Baroness Finlay played a vital role in past APPG inquiries.
Since becoming a member of the House of Lords in 2001, she has been active on a wide range of health issues. Currently she is working to get an Access to Palliative Care Bill before Parliament.
A professor of palliative medicine at the Cardiff University School of Medicine, Baroness Finlay has held a number of influential positions including President of the Royal Society of Medicine.
Baroness Masham of Ilton (Crossbench), Vice Chair
Baroness Masham was elected to her role as Vice Chair of the APPG in August 2018. She played a vital role in the APPG inquiry into Parkinson's and mental health as a panel member. Baroness Masham has a personal connection to the condition as her late husband, The Earl of Swinton, experienced a stroke as well as Parkinson's.
Since becoming a life peer in 1970, she has been an advocate for health issues as well as penal reform. As a three-time Paralympian and President and Founder of The Spinal Injuries Association, Baroness Masham is a champion for disabled people, both in her political life and beyond.
Nick Thomas-Symonds MP (Labour), Vice Chair
Nick has been a vocal advocate for people affected by Parkinson’s since entering Parliament in 2015.
As well as speaking in numerous debates on everything from welfare to the impact of the condition on younger people, Nick also sat on the APPG panel to hear evidence for the recent inquiry into mental health support for people with Parkinson’s affected by anxiety and depression.
Sheryll Murray MP (Conservative), Vice Chair
On joining the APPG, Sheryll swiftly and successfully stood as Vice Chair of the Group. Sheryll brings particular insight to the group, having previously worked in an NHS surgery located in what is now her constituency.
Sir David Amess (Conservative) Secretary
An MP since 1983, Sir David is an experienced parliamentarian and has been a member of many select committees, including the Health Select Committee (1998-2007).
Mary Glindon (Labour), Secretary
Mary joined the group after her friend in the local Parkinson's group in her constituency of North Tyneside asked her to get involved.
She has tabled a number of parliamentary questions to help advance the needs of people with Parkinson's and used her column in a local paper to raise awareness of the condition for Parkinson's Awareness Week 2016.
Glyn Davies (Conservative) Treasurer
A long standing member of the group, health issues are hugely important to Glynn.
He is President of both the Montgomeryshire Parkinson's and Motor Neurone Disease branches.
What has the APPG done?
The APPG has launched a groundbreaking report (PDF, 4MB) looking at mental health support for people with Parkinson's who experience anxiety or depression.
The report exposes many challenges people with Parkinson's face in receiving high quality, timely treatment that meets their needs.
The report makes several recommendations to Government and other relevant authorities that could improve mental health services and make it easier for people with Parkinson's to access them.
For more information, please see our mental health matters too campaign page.
In the past the APPG has held an inquiry into NHS continuing healthcare in England and revealed huge failings with the system.
Another inquiry into access to health and social care for Parkinson's found major inequalities in access to information and services for people affected by the condition.
How can I join the APPG for Parkinson's?
If you are a parliamentarian and would like to join the APPG, please email [email protected].
The APPG for Parkinson's is listed on the official register of All-Party Parliamentary Groups.