Research Champions: let's raise awareness of research
Activities and information to help Research Champions get more people involved in research.
Watch and share Par-Con 2024 highlights
On 11 and 12 October we were joined by people across the UK and beyond for Par-Con, a 2-day in-person and online event for the Parkinson’s community. Par-Con brought together expert speakers and people affected by the condition, whether they had Parkinson’s or knew someone who did, and gave people a space to connect and learn.
You can watch and share the highlights or each session in full on the Parkinson’s UK Youtube channel.
Encourage your community to attend an online research event
From drug approvals to exciting new projects on biomarker research, 2024 marks another year of significant progress in Parkinson's research. Join Micheal J Fox Foundation scientists, staff and other experts as they discuss the latest in the search for better treatments and advances in the understanding of Parkinson's.
When? Thursday 21 November 5 pm to 6 pm GMT
Where? Online. Register to attend on the Michael J Fox Foundation website.
Listen to and share the latest NOSPRIG research podcast
In this episode, hosts Helga and Julie discuss using virtual reality to help people with Parkinson's manage facial masking with guests Dr Cassie Terry and Dr Fiona French.
Neil Morrison, who was diagnosed with Parkinson’s in 2018 and has been involved in the study from the start, also shares his insights.
This leaflet is designed as a 'first touch' information resource for everyone who is interested in research. You can order 20 leaflets at a time for free.
Great for introducing your neighbours, local GP surgery, Parkinson's support group or patients to research.
We'll give the group an overview of the latest research and how the Parkinson's community can get involved through our Research Support Network.
Individual groups can request a member of our research team join them via Zoom. We may be able to attend larger events in-person.
Print and share our Research Roundup
This month we’re pleased to share a research update on the latest Virtual Biotech funding, an opportunity to take part in research and research results thanks to you.
There are instructions for claiming printing expenses from the Research Support Network below.
You can claim printing expenses from the Research Support Network.
Complete a volunteer expenses form with Liz Nash as your named staff contact and attach or scan and insert all receipts to the form. Then email or post the form to [email protected].
You can download our PDF about volunteer expenses for more information.
More ways to get involved with research
Everyone is welcome to become a Research Champion for a local group, whether you're affected by Parkinson's or not.
Email Alex at [email protected] and we can help connect you with a local group.
Become a Parkinson's UK member to you can receive our research magazine, Progress, delivered by post.
You can also download the latest edition of Progress to share by email.
RIGs are made up of people with Parkinson's and their loved ones, students, researchers and healthcare professionals. They meet frequently, online and in person, to share the latest research and what's happening locally.
Join the East of England Research Interest Group's 'Research Reading Group'
The Research Reading Group was put together to help people understand scientific papers published on Parkinson's.
Parkinson's researcher Dr. Lucy Annett at the University of Hertfordshire hosts the reading groups. Anyone who is interested is welcome to join. The group meets quarterly online via Zoom at a time to suit members.
Other ways to raise awareness of research in your community
- Encourage your community to join the Research Support Network to get connected with the latest research news, events and opportunities by email.
- Find research that is looking for people to take part in your local area on the Take Part Hub.
- Share the latest updates about Parkinson's research from our research blog, or research news on our website.
- Share Parkinson's UK research YouTube videos on your social media.
- Invite your community to our online and in-person research events.
- Read more about the research projects Parkinson's UK is currently funding in our latest Active Research Grants update.
- Let people know about the Parkinson's UK Brain Bank, which collects precious tissue from people with and without Parkinson's who have decided to leave their brains to Parkinson's research.
- Present to your local support group about research and how to take part. You can find template presentations here. Need some guidance on presenting to a group? Contact Alice at [email protected]
Stuck on what to do next or need more support?
Get in touch with Alice Keogh Research Participation and Engagement Officer at Parkinson's UK.
Email [email protected] or call 020 7963 3610.