A warm welcome at the Belfast early onset Parkinson's cafe
Parkinson's UK Northern Ireland launched its early onset Parkinson's cafe, Belfast in June 2017. We catch up on how it's going.
The monthly get together offers people of working age living with Parkinson's, as well as their family and friends, the chance to meet and chat while accessing support in an informal setting.
Belfast man, Jim Childs, who is 58, was diagnosed with Parkinson's in 2017.
"I was in shock after my diagnosis and it didn’t really sink in for a while. I looked online to find out more information and found the Parkinson's UK website.
"I got in contact with the Parkinson's Local Advisor for my area who suggested I might enjoy the cafe. I was very apprehensive at first as I had only had my diagnosis a few months before. I decided to give it a go and if I didn’t like it, I didn't have to go back.
"The cafe was not anything like I expected, it was great to talk to others who could identify with what I was living. There was also a lot of humour and I have made some great friends."
William Stafford, 53, also from Belfast was diagnosed with Parkinson's in 2012.
"I found out about the cafe and to be honest only went along on the first evening to keep my wife happy, but was I in for a surprise!
"Talk to anyone with Parkinson's and they will probably tell you the same thing, you might be surrounded by family and friends doing their best for you but there are times when you feel very alone. Suddenly, at the cafe, there are people around you who have the same issues and know exactly what you are going through.
"It's like therapy, listening to all the diagnosis stories, talking about medication, doctors and treatments.
"As humans we are sociable animals that crave company and you don't stop becoming a person just because you have an incurable condition.
"Like most groups, it is a collection of interesting characters and personalities from all walks of life.
"Each one of us has a story to tell. The banter and craic are good and the cafe forces you to get your face washed and get out of the house!"
The idea for Parkinson's cafes came from Parkinson's UK volunteer David Allan, who was diagnosed 7 years ago while he was still in his 40s.
He said: "Parkinson's can happen to adults at any age, but it can be really hard for those of us who are diagnosed at younger ages because the condition is so strongly associated with older people. We are at a different stage in our lives, and often have different issues to deal with alongside our Parkinson's.
"We know that some people, particularly those recently diagnosed, are reluctant to join formal support groups, and people of working age are more likely to be juggling employment, family and other commitments that make it hard to get to activities during the day."
The Belfast cafe takes place on the 3rd Thursday of every month (except July, August and December) upstairs at Costa Coffee, Yorkgate, Belfast BT15 1JH from 7.30pm.
Northern Ireland Area Manager, Anne Donnelly said: "The cafe is an informal social gathering in a quiet and accessible venue. It's open to anyone of working age with Parkinson's and their family and friends. Please come and join us – you're guaranteed a warm and friendly welcome.
"We are also planning to start a new early onset Parkinson's cafe in Newry over the coming months."
Talk to Anne to find out more, tel: 0344 225 3623 or email [email protected]