What is Parkinson’s Connect?
Parkinson’s Connect is our pioneering programme to connect with people with Parkinson’s, and their families, right at the point of diagnosis.
Parkinson’s Connect works by allowing doctors and healthcare professionals to refer you directly to Parkinson’s UK at diagnosis, so that you can access the whole network of support we offer including:
- Our Parkinson’s adviser service and confidential helpline
- Up to date, reliable health information
- Expert tips to help you live well with the condition
- Ways to connect with other people with Parkinson’s, families, friends and carers, across the UK and in your local area
- An online profile that can provide tailored support for people newly diagnosed with Parkinson's.
We’ve designed Parkinson's Connect with people with Parkinson’s, their families, friends, carers and healthcare professionals, who are shaping it every step of the way.
Who’s it for?
Parkinson’s Connect is for everyone with Parkinson’s, as well as family, friends and carers. From the moment you’re diagnosed, whether online or offline, you can be connected to our support.
Our aim is to be there for every single person with Parkinson’s. To connect people to information and support that’s free of charge and right for you.
When can I access it?
We’ve started rolling out the Parkinson’s Connect programme and are currently working with 6 NHS healthcare teams, who are referring patients and families directly into our service. We also have over 300 people using and testing our online profile.
We’re now developing the next stage of our Parkinson’s Connect programme ready to roll out to new NHS sites in late 2023 and early 2024.
What support is available right now?
If you have Parkinson's, or you know someone who has, we have the right support for you. We're here to help everyone feel in control of life with Parkinson's. See what support we have available below under "Get support".
Get support
Our specialist adviser team can provide information about any aspect of living with Parkinson’s.
Our Parkinson's UK local groups are a great place to meet other people in the Parkinson's community. There are groups for younger people with Parkinson's too.
Connect with other people living with Parkinson's, as well as family, friends and carers for people with the condition, on our online forum. You can write messages, read tips and share ideas.
Read tips and stories from other people with Parkinson's, advice from health professionals and lots more in our magazine.
Are you a healthcare professional interested in Parkinson's Connect?
We're not looking for new healthcare teams to work with at this stage. If you have contact us about Parkinson's Connect previously you should have been updated via email on the latest ways in which we can work with your team.
We have other resources available to help you provide better support for people with Parkinson's.
Newly diagnosed with Parkinson's?
Take a look at our practical information and guidance as a starting point.