First Steps programme

First Steps is our online programme for people recently diagnosed with Parkinson's and their family, friends and supporters.

The programme

In 3 sessions, we'll help you to take the first steps in making sense of your diagnosis. And we'll empower you to start living well with Parkinson's by providing you with the information and support you need.

This programme is for you if: 

  • you're looking for ways to make sense of your diagnosis 
  • you don't know what information and support is available to you 
  • you feel ready to meet other people who have also been recently diagnosed with Parkinson's, and their family, friends and supporters. 

You'll take part from the comfort of your own home, joining a small group of 12 other people who have recently been diagnosed with Parkinson's. Some people take part with a family member, friend or supporter, while others join alone. You'll be able to ask questions, share your experiences and connect with people who are at a similar stage in their Parkinson's journey.

Hosted by volunteers who have Parkinson's, the programme spans 3 x weekly 2.5-hour sessions on Zoom. We'll have regular breaks throughout each session.

To take part, you will need access to a device with a webcam and a reliable internet connection. If you're not feeling confident using Zoom, we provide a written guide on how to get started and use the key features.

Session 1: 

  • making sense of Parkinson's
  • understanding symptoms
  • reflecting on your diagnosis
  • the healthcare professionals that can help you to manage your Parkinson's
  • Parkinson's UK support.

Session 2: 

  • the information and support that's available to you
  • the benefits of physical activity in managing your Parkinson's
  • personal wellbeing
  • diet and food
  • accessing support for your mental health.

Session 3:

  • Parkinson's practicalities
  • sharing your diagnosis
  • practical tips for loved ones
  • connecting with Parkinson's UK
  • connecting with others. 

People tell us that after they take part they feel: 

  • less alone after meeting other people in a similar situation
  • more positive and confident in moving forward
  • informed of the information and support available.

Here's what some people have told us:

"I feel more optimistic about my diagnosis now. It's really helped me to accept that I have Parkinson's."

"I feel more informed and not so alone." 

"I would definitely recommend this programme to newly diagnosed people. The information you receive is fantastic and very helpful."

Book your place

All online sessions are now fully booked. Please contact us using the details below if you would like to be notified when bookings for our January 2027 sessions open.

In the meantime, you can check out our Guide for living well with Parkinson's and Newly diagnosed webinars.

Contact us

If you have any questions, please contact the Newly Diagnosed team on 020 7963 9381 or email [email protected].

First Steps in Oxfordshire

Across Oxfordshire, we are piloting a return to face-to-face delivery of First Steps, hosted by volunteers who have Parkinson's.

Other newly diagnosed support

Find out more about our other online programmes, webinars and information sessions for people newly diagnosed with Parkinson's and their friends and families.