Our work in Scotland

Around 13,000 people have a diagnosis of Parkinson's in Scotland. And this number is growing. 

This year another 1,500 people will be diagnosed with Parkinson's, about 30 people each week.

About half of people live with more advanced Parkinson's. This means that symptoms are complex, and medication does not manage them effectively.

Parkinson's affects people of any age. In Scotland, almost 1 in 6 are under 65 while 1 in 3 are over 80.

Our work

We're here to support every Parkinson’s journey. Our small team works with over 300 volunteers based in communities across Scotland. We work together to improve the lives of people with Parkinson's and those who love and care for them.

Support

There are over 45 local groups in Scotland providing friendship and support for people in the Parkinson’s community. Our volunteer-led Scotland Development team is working to develop accessible local activities and support that people with Parkinson's need to live well with the condition. This includes things like exercise, singing groups, dance and creative activities. As well as opportunities to meet with others.

On our frontline are 9 Parkinson's advisers, who work in communities across the country to provide free and confidential information and support, including access to social security and other entitlements.

We provide information events and self-management courses, online and face-to-face, to help people with Parkinson's and carers increase their resilience and knowledge about the challenges that Parkinson's brings.

Improving services

Our team helps to support 3 regional networks of health and care professionals with a special interest in Parkinson's and improving local care and services. We educate and train health and care professionals, to help them improve the quality of care they provide.

We also work to raise vital funds to support and grow our activities and to raise awareness of Parkinson's. We work with the whole Parkinson's community to influence local and national services, and campaign for positive change. 

Download our Scotland can't wait report

We’ve launched a major new report which highlights that Scotland currently does not have enough Parkinson’s nurses. 

This is the latest version of this report.