Become a campaigner
Join a community of campaigners all working together for people with Parkinson's.
Campaigning is more important than ever right now. Cost of living. Access to better healthcare. NHS backlogs. We're fighting for people with Parkinson's.
And you can help. In a way that works for you. Fight for high-quality health and social care and a benefits system that helps everyone when they need it.
How can I help?
Ask your MP to join the All-Party Parliamentary Group on Parkinson's and be a champion for the community in Parliament.
Personal stories are essential in raising awareness of what it's really like for people living with Parkinson's, as well as their care partners and families.
Join our team of volunteer campaigners working locally to address the needs of people with Parkinson's.
Join our movement of over 8,000 people. Support in various ways each month and make a real difference.
Get inspired
Campaigners and volunteers are vital to our work. Hear from some of them below on what it means to be involved.
Mark's story
“I'd recommend attending one of the party conferences with Parkinson’s UK.
“The lived experience is integral to helping people in power understand what it’s really like for carers and the cared for, and why our 'asks' are so important.
“It can be a bit nerve-wracking if you haven’t spoken to MPs before, but the staff team are really good at supporting volunteers to get their points across, and the MPs are willing to listen and help where they can.”
Carer Mark Worrall meeting with Justin Madders MP at the 2024 Labour Party conference
Christine's story
"It was great to be at the Lib Dem conference in Brighton this year.
"I found it very interesting to meet 4 MPs and be able to talk to them about my experiences of living with Parkinson's, and how they could help us to fulfil some of the priorities Parkinson's UK have this year.
"There was a real buzz at the conference, not least because the Lib Dems gained 72 MPs following the general election.
"Brighton was fun, I even managed to have a paddle!"
Volunteer Christine meeting with Steff Aquarone MP along with Laura Cockram, Parkinson's UK's Head of Campaigns, at the 2024 Liberal Democrat conference
Garth's story
"I have Parkinson’s myself, there’s a high chance I could develop dementia. It’s vital we improve the care for people in our community with the condition.
"I used to be a nurse, I’ve seen first-hand the impact poor care can have on people with Parkinson’s. The training social care workers receive isn’t good enough, it has to improve."
Latest campaign news
Our local campaigners have been busy meeting their new MPs and campaigning to improve local services for people living with Parkinson’s across England. Here are some highlights from the last 6 months.
We're disappointed that Lecigon, a new treatment for advanced Parkinson's, has been rejected by NHS Scotland. And we're increasingly concerned about access to advanced treatments in Scotland.
We're delighted that the government has launched the first ever UK-wide forum to address gaps in treatment and care for people affected by neurological conditions.
We brought together healthcare professionals, charities, people with Parkinson's and senior Scottish government officials for a summit in Edinburgh on time critical medication.
Get in touch
We're here to answer any questions and give you any support around campaigning. Email the Campaigns team at [email protected]